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Program
9:00 am - 9:30 am - 14 October 2022
Welcome to Day Two
9:30 am - 11:20 am - 14 October 2022
Stream 1 | Concurrent Session | Psychosocial | Sponsored by QuoCCA
9:30 am - 11:20 am - 14 October 2022
Stream 2 | Concurrent Session | Ethics
Chair: Camilla Rowland
9:30 am - 11:00 am - 14 October 2022
Stream 3 | Concurrent Session | Clinical Practice - Collaboration
Chair: Naomi Katz
11:30 am - 11:45 am - 14 October 2022
Meet Your Concurrent Presenters
Networking - 2022APPCC
Join a networking room to continue conversations about a presentation that you have just watched and meet the concurrent presenters.
Each room holds 16 guests and will run for approx. 10mins
Each room holds 16 guests and will run for approx. 10mins
Click HERE to access the Networking Rooms
11:45 am - 12:00 pm - 14 October 2022
‘Recharge’ – an opportunity to take a comfort break, view the posters, jump into the wellness hub and stretch it out!
12:00 pm - 2:00 pm - 14 October 2022
Stream 1 | Art Workshop | The many and varied benefits of Art therapy in paediatric palliative care
Presenter: Judy King
A live art therapy workshop – materials will be provided to delegates registered by 5th September
Introduction:
As the provision of paediatric palliative care widens in this region there is increased interest in exploring as many ways to engage with children and their families. To help them express their experiences of being, or caring for, a child with a life-limiting condition.
Art therapy within the multi-disciplinary team can often bring a unique perspective of utilising the art-making process.
All health professionals in paediatric palliative care have the child and family foremost in their approach. However, at times there is a cost to ourselves. Do we give ourselves time to reflect on that?
Methodology:
· Short overview of art therapy and its application in paediatric palliative care with clinical examples and short case studies.
· Engagement in experiential art making- no art experience necessary. (Art materials provided within registration packs).
· Time to share with like-minded professionals in break out rooms.
Aims / Objectives:
· An opportunity to learn a little more about the application of art therapy in paediatric palliative care.
· To provide an opportunity for the sharing of insights, initiatives and resources in using creative approaches and their benefits to the children and their families.
Key Learnings:
· A broader appreciation of what constitutes art materials and their uses in a therapeutic framework.
· Valuing the process of art making as well as the creative outcome.
· To reflect on the resilience, we bring and the boundaries we put in place for this critical work.
Join Workshop
Please copy and paste this link into your browser to join the Zoom:
https://delegateconnect-co.zoom.us/j/82531752684?pwd=ZnlXNFhrdVVQTE9kSnZmclFEUGpkQT09
12:00 pm - 2:00 pm - 14 October 2022
Stream 2 | Workshop | Research in paediatric palliative care within Australia and New Zealand
Presenter: Ross Drake & Alison Bowers
Introduction:
As paediatric palliative care (PPC) services develop within Australia and New Zealand, there is increased interest within various types and themes of research. Such research can lead to engagement with consumers, and enhanced clinical care.
Background:
A workshop provides an opportunity for sharing of ideas, resources, and inspiration around how to undertake research within PPC. Further, there is also opportunity for networking, particularly between clinicians who share similar research interests. Collaboration between centres is likely to lead to better outcomes achieved more quickly.
A workshop provides an opportunity for sharing of ideas, resources, and inspiration around how to undertake research within PPC. Further, there is also opportunity for networking, particularly between clinicians who share similar research interests. Collaboration between centres is likely to lead to better outcomes achieved more quickly.
Aims / Objectives:
- Provide content from a successful and experienced clinician-researcher within paediatric palliative care within Australia and New Zealand
- Provide a forum where clinicians interested in research can introduce themselves, share ideas, network and potentially further their research agenda
Key Learnings:
- It is possible for clinicians to become involved in research and this can enhance care
- It is helpful to develop a focus for your research (elevator pitch) and collaborate with others with a similar interest
- Networking can foster research ideas, which could then be progressed with other structural support (e.g. joining a research group, or participating in a protocol writing workshop)
Join Workshop
This workshop has limited capacity and those who completed the Expression of Interest (EOI) form have priority access to this workshop. [EOIs to attend this workshop have closed]
Those who expressed an interest in this Workshop have been sent an email with the Zoom link - please check your spam folders for joyn@...
If you did not receive the email, or if you are now interested in attending, please chat with us via the SUPPORT button.
12:00 pm - 2:00 pm - 14 October 2022
Stream 3 | Workshop | The power of parents in education and resource development- an interactive workshop
Education is a key component to the work of specialist paediatric palliative care services. Including bereaved parents in education provides insightful and valuable perspectives to the provision of education and skill development within paediatic palliative care (Snaman et al, 2018).
Engaging parents in education and resource development can be a daunting prospect for health professionals to consider given the complex and layered nature of parental grief and distress. The facilitators of this workshop (which comprises specialist paediatric palliative care health professionals and bereaved parents) will explore the strengths and challenges of partnering with parents in the provision of education and resource development, and promote a framework to assist fellow health professionals to consider the value of parent perspectives in education.
Aims/objectives:
Participants will increase their understanding and confidence in maximising engagement and utilisation of parents in educational opportunities/resource development and to integrate interaction with families lived experience.
Methodology:
The workshop will be an immersive experience involving a mix of breakout sessions, and a range of creative communication tools, run via an online platform (i.e., zoom). The workshop will be co-facilitated with bereaved parents who have participated in education and resource development, who can share their experiences and help guide participants. We will encourage participants to come to the workshop with a learning/education scenario to be able to develop throughout the course of the session.
Key learnings:
Participants will have the opportunity to explore the value and impact of parent's experiences and will be introduced to a framework to help guide and support utilisation of parents in education and resource development. Core themes will include preparation and planning, timing and readiness for parent participation, support and follow up and honouring the story of their child and family.
Join Workshop
Expressions of Interest to attend this Workshop have closed.
Those who applied for this Workshop have been sent an email with the Zoom link.
If you did not receive the email, or if you are interested in attending, please chat to us via the SUPPORT button.
2:00 pm - 2:30 pm - 14 October 2022
‘Recharge’ – an opportunity to take a comfort break, view the posters, jump into the wellness hub and stretch it out!
2:30 pm - 3:45 pm - 14 October 2022
Stream 1 | Concurrent Session | Clinical Practice - Trials and Technology
Chair: Sara Fleming
2:30 pm - 3:30 pm - 14 October 2022
Stream 2 | Workshop | Watch your step: you are now entering the zone of parental discretion.
Presenter: Karen Jardine, Dr Deborah Gilmour, Dr Helen Irving & Alyson Gundry
Palliative care is viewed as a basic human right and extends to the care of young people with life-limiting conditions by including the loved ones committed to their care. Mattie Stepanek, a child who died from a neuromuscular illness, had posted that paediatric palliative care […] no longer means helping children die well, it means helping children and their families to live well and then, when the time is certain, to help them die gently.
The intention of therapeutic interventions requires consideration. When the intervention’s intent is to prevent the child from dying, when death is inevitable, then it is ethically acceptable to withhold same. Where the purpose of treatment is to manage symptoms, then this needs to be weighed against care goals. When there is disparity amongst the perspectives of involved parties about care; discord emerges.
This 60-minute interactive, capped number (20pax) workshop will discuss, explore and debate the roadblocks and detours that can emerge when families and healthcare providers don’t see eye-to-eye. The workshop will consider - what is in the best interests of the child? And the family? Who or how is ‘quality of life’ determined?
While the case exemplar offers a clinically relevant overlay for discussion by focusing on feeding and nutrition choices for a child with a life- limiting condition, it will explore more than the topic of ‘risk feeding’.
Join a medical consultant and an allied health professional as we collaboratively work through the challenges and ethical questions encountered within interdisciplinary teams as we unpack the case’s nuances and highlight a decision-making framework which will deliver take-home applicability for your clinical practice.
Whether you are new to the specialist paediatric palliative care practice, or attend bringing years of experiences to share, all questions and contributions are valuable as we explore this topic together.
Join Workshop
This workshop has limited capacity and those who completed the Expression of Interest (EOI) form have priority access to this workshop. [EOIs to attend this workshop have closed]
Those who expressed an interest in this Workshop have been sent an email with the Zoom link - please check your spam folders for joyn@...
If you did not receive the email, or if you are now interested in attending, please chat with us via the SUPPORT button.
2:30 pm - 3:45 pm - 14 October 2022
Stream 3 | Concurrent Session | Research Studies
Chair: Simon Waring
3:45 pm - 4:00 pm - 14 October 2022
‘Recharge’ – an opportunity to take a comfort break, view the posters, jump into the wellness hub and stretch it out!
Networking - 2022APPCC
4:00 pm - 5:00 pm - 14 October 2022
Stream 1 | Panel Discussion | You Can't Ask That: The Good, The Bad & The Ugly
Dying is difficult in any language.
The power of words, actions, and human behaviour can have an enormous impact on the way families experience their palliative care journey.
This session draws upon real-life experiences, as we hear from families as they reflect on a time when their child was ill and receiving end-of-life care.
This session draws upon real-life experiences, as we hear from families as they reflect on a time when their child was ill and receiving end-of-life care.
The conversation will be real and raw and will allow all involved to hear it ‘straight’ and learn what works, what doesn’t, and how we can be better.
In this session, we speak to a range of families, about their paediatric palliative care journey and how each conversation, interaction, and piece of new information was delivered, received, and digested, and how it impacted them as a family. This session is about listening, learning, and leading, it is a conversation about grief, truth, and life.
We acknowledge and appreciate the openness, vulnerability, and courage it’s taken for these families to share with us.🤍
We acknowledge and appreciate the openness, vulnerability, and courage it’s taken for these families to share with us.🤍
4:00 pm - 5:00 pm - 14 October 2022
Stream 2 | Panel Discussion | Symptom Management in Paediatric Palliative Care
- 2022APPCC - Room 2
The focus of this session is symptom management rather than pain management. The session will look at non-pharmacological approaches to symptom management and quality of life for young people with palliative care needs. Approaches you may not immediately think about when you think of symptom management. The session is about collaboration with clinical partners, providing coordinated and comprehensive, individualised care. We need to think holistically about the whole patient, spiritual and emotional needs as well as physical and medical treatments. The session will look at alternate approaches to symptom management, including radiotherapy, music therapy, and occupational therapy.
4:00 pm - 5:00 pm - 14 October 2022
Stream 3 | Workshop | Self Care for Health Professionals
Presenter: Annie Love
How do we honour and care for ourselves in order to show up as the best possible humans and health professionals? In this session, we will join together in ‘sacred circle’ for self-reflection and journaling time, and discussion around practical self-care tools to help us find joy and live our best lives.
Everyone's always going on about the importance of 'self-care', but what even is self-care?
Bring along a journal and pen as we gather together for this relaxing workshop.
In the meantime if you are struggling with self-care, or a self-care queen?
Take Annie Love's quick quiz to see whether you're a ninja at self-care or need some help building more self-care into your life.
Join Workshop
This workshop has limited capacity and those who completed the Expression of Interest (EOI) form have priority access to this workshop. [EOIs to attend this workshop have closed]
Those who expressed an interest in this Workshop have been sent an email with the Zoom link - please check your spam folders for joyn@...
If you did not receive the email, or if you are now interested in attending, please chat with us via the SUPPORT button.
5:00 pm - 5:15 pm - 14 October 2022
