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Paediatric Palliative Care Conference Australia 2022
Australian Paediatric Palliative Care Conference

Research in paediatric palliative care within Australia and New Zealand

Workshop

Abstract Description

Institution: University of Technology of Sydney - New South Wales, Australia

Intro

As paediatric palliative care (PPC) services develop within Australia and New Zealand, there is increased interest within various types and themes of research.  Such research can lead to engagement with consumers, and enhanced clinical care.

Background

A workshop provides an opportunity for sharing of ideas, resources, and inspiration around how to undertake research within PPC.  Further, there is also opportunity for networking, particularly between clinicians who share similar research interests.  Collaboration between centres is likely to lead to better outcomes achieved more quickly.

Aims / Objectives

1.       Provide content from a successful and experienced clinician-researcher within paediatric palliative care within Australia and New Zealand
2.       Provide a forum where clinicians interested in research can introduce themselves, share ideas, network and potentially further their research agenda

Methodology

The workshop would take the following outline:

10 mins : Introduction to workshop 

30 mins: Workshop participants introduced themselves and state their “research mission” in 1 phrase (elevator pitch : 27 words, 9 seconds, up to 3 points)

30 mins: Presentation by Paediatric Clinician-Researcher on how they have progressed research within their clinical career (giving examples and strategies) 

10 mins: Q and A 

20 mins: Breakout Room 1 – Topics include neonates, children, and adolescents, historically marginalized populations (we would ensure that there was a researcher able to facilitate each breakout session)

20 mins: Breakout Room 2 – Topics include health services research, outpatient/community investigation, caregiver support, education research, qualitative research (including communication), developing and studying interventions (we would ensure that there was a researcher able to facilate each breakout session)

15 mins: Conclude.  Aim to give people next steps on how they can progress their “research mission” eg. Examples of a group they could join, or how to develop a protocol.

Key Learnings

1.       It is possible for clinicians to become involved in research and this can enhance care
2.       It is helpful to develop a focus for your research (elevator pitch) and collaborate with others with a similar interest
3.       Networking can foster research ideas, which could then be progressed with other structural support (e.g. joining a research group, or participating in a protocol writing workshop)

Timeframe Required

Between 2 and 2.5 hours

Preferred Audience Size

30 Participants

Presenters

Authors

Authors

A/Prof Anthony Herbert - University of Technology of Sydney , Dr Ross Drake - Starship Children's Hospital , Linda Brown - University of Technology Sydney , Dr Vanessa Yenson - University of Technology Sydney