Simon’s personal experience of both adult and paediatric services drives his palliative care advocacy. Simon cared for his young son, Marmaduke, and his wife Millsom, through parallel terminal cancer journeys. His family’s experience of adult palliative care was restricted in scope, length and flexibility, while the paediatric palliative care received was extensive, responsive and supportive over a long period in hospital and in the home. Since 2015, Simon has spoken to politicians, health professionals and the public on the importance and impact of palliative care for patients, families and the community. As a consumer representative he has worked on projects with Queensland Health, The Royal Childrens Hospital Melbourne, and Palliative Care Australia, and more recently in facilitating consumer involvement for Safe Care Victoria. His hope is to contribute to the continued growth, promotion, and acceptance of palliative care.