Dr Suzanne Nevin is a Post-doctoral Researcher at the Behavioural Sciences Unit (BSU) at UNSW Sydney and Sydney Children’s Hospital, Randwick. She has a Bachelor of Psychology (Honours) and has recently completed PhD within the School of Clinical Medicine, UNSW Sydney. Her research is focussed on co-developing evidence-based psychosocial approaches to improve quality of life outcomes for children living with rare neurodegenerative conditions and to provide psychological supports for affected families.